Neurofibromatosis, Inc.

Note: Blue background indicates NF2 resources are available.

Nebraska

University of Nebraska Medical Center
Neurogenetics Clinics for NF Patients
600 So. 42nd Street
Omaha, NE 68198-5430
Phone: (402) 559-6800
Fax: (402) 559-6688

Contact: NF1 & NF2
G. Bradley Schaefer, MD
(Geneticist)

Nevada

University of Nevada School of Medicine
2040 W. Charleston St.- 401
Las Vegas, NV 89102
Tel: 702-671-2200

Contact: NF1 & NF2
Marisol Gregorio, Coordinator
Dr. Colleen Morris
ADULTS & CHILDREN
Clinical Genetics

New Hampshire

Dartmouth-Hitchcock Medical Center
Genetics Clinic
Clinical Genetics/Child Development
1 Medical Center Drive
Lebanon, NH 03756
Phone: (603) 650-7886
Fax: (603) 650-8268

Contact:
John Moeschler, MD
Mary Beth Dinulos, MD
Susan Z. Berg, MS
(Genetic Counselor)

New Jersey

	Children’s Hospital of New Jersey 201 Lyons Avenue Newark, NJ 07112 Phone: (973) 926-4021	Contact: V. Goyal, MD (Developmental Specialist)
	Cooper Hospital Div. of Genetics Three Cooper Plaza, Suite 309 Camden, NJ 08103 Phone: (856) 968-7255 Fax: (856) 541-6213	Contact: Rhonda Schnur, MD Sara Ennis, MS
	Genetics Associates 375 Engle Street Englewood, NJ 07631 Phone: (973) 831-6020 Fax: (973) 831-6001	Contact: Shari Fallot, MD
	Hackensack University Medical Center 30 Prospect Avenue, WFN Building, 1st Floor Hackensack, NJ 07801 Phone: (201) 996-5437 (201) 996-5264 (genetics) Fax: (201) 996-0827	Contact: Stephen J. Thompson, MD (Pediatric Neurology/Neuro-Oncology) sjthompson@huned.com Robert Wallerstein, MD (Geneticist)
	Jennifer Ibrahim, MD St. Joseph's Medical Center Section Genetics 703 Main Street Paterson, NJ 07503 phone: 201-227-5526 fax: 201-503-1029
	Institute of Genetic Medicine St. Peter’s University Hospital 254 Easton Avenue New Brunswick, NJ 08903 Phone: (732) 745-6659 Fax: (732) 249-2687	Contact: Debra Day-Salvatore, MD, Ph. D.
	Monmouth Medical Center Neurocutaneous Syndrome Program Specialized Pediatric Ambulatory Center 307 Third Avenue Long Branch, NJ 07740 Phone: (732) 923-7790 Fax: (732) 229-2897	Contact: Ronald Barabas, MD Patti L. Brown, RN
	Morristown Memorial Hospital 100 Madison Avenue Morristown, NJ 07962 Phone: (973) 971-5636 Fax: (973) 290-8324	Contact: Genetics Associates of NJ (201) 503-1022
	Robert Wood Johnson University Hospital Department of Neurology 125 Paterson Street, #6100 New Brunswick, NJ 08903-0019 Phone: (732) 235-6593 (732) 235-7733 (appointments) Fax: (732) 235-6597	Contact: NF1 & NF2 William Johnson, MD, Ph.D. (Neurologist)
	University of Medicine & Dentistry of NJ Neurofibromatosis Center 90 Bergen Street, Suite 4100 Newark, NJ 07103-2499 Phone: (973) 972-3300 Fax: (973) 972-3310	Contact:NF1 & NF2 Beth Pletcher, MD (Geneticist) Frank Desposito, MD

New York

	Robert Aiken, MD Director, Neurological Oncology Mt. Sinai School of Medicine Box 1136 New York, NY 10029-6500 Telephone: 212-241-4503	Contact: NF1 & NF2 robert.aiken@mssm.edu
	Albany Medical Center NF Program Dept. of Neurology (MCTO) 47 New Scotland Avenue Albany, NY 12208 Phone: (518) 262-5226	Contact: Spencer G. Weig, MD (Pediatrician) Murnane, MD (Adults)
	Beth Israel Medical Center Division of Medical Genetics 350 East 17th Street, 6BH 10 New York, NY 10003 Phone: (212) 420-4179 Fax: (212) 420-3440	Contact: NF1 & NF2 Victor Penchaszadeh, MD (Geneticist) John Pappas, MD Katherine Daley, MS
	Blythedale Children’s Hospital Valhalla, NY 10595 Phone: (914) 592-7555 Fax: (914) 592-7138 Voice Mail: (914) 592-7138, Ext. 526	Contact: Robert Marion, MD Murray Engel, MD
	Buffalo Neurosurgery Group 550 Orchard Park Road, Suite A105 West Seneca, NY 14224 Phone: (716) 677-6000 email: bng@buffnet.net	Contact: NF2 David E. Clabeaux, CMPE Administrator P. Jeffrey Lewis, MD
	Sujana S. Chandrasekhar, M.D. New York Otology 364 East 69th Street New York, NY 10021 Phone: 212-249-3232 www.newyorkotology.com	NF2
	Children's Hospital of Buffalo-Suny Dept. of Neurology 219 Bryant Street Buffalo, NY 14222 Phone: (716) 878-7840 Fax: (716) 878-7326	Contact: Michael Cohen, MD Michael Kohrman, MD Thomas Langan, MD Susan Kerr, MD
	Tanvir Choudhri, M.D. Assistant Professor, Neurosurgery One Gustave L. Levy Place Box 1136 New York, NY 10029 Phone: 212-241-8560 Fax: 212-831-3324	NF1 and NF2
	Columbia Presbyterian Medical Center Department of Neurological Surgery 710 W. 168th Street, Room 414 New York, NY 10032 Phone: (212) 305-1728 Fax: (212) 305-3629	Contact: NF2 Michael Sisti, MD (Neurosurgeon, Gamma Knife)
	Columbia Presbyterian Medical Center Babies Hospital Genetics Clinic, PH-12 West 622 West 168th Street New York, NY 10032 Phone: (212) 305-6731 Fax: (212) 305-9058	Contact: Dr. Kwame Anyane-Yeboa Carrie Koval, MS
	Isabelle Germano, M.D. Associate Professor, Neurosurgery Director, Mount Sinai Medical Center Stereotactic & Functional Neurosurgery Program One Gustave L. Levy Place Box 1136 New York, NY 10029 Phone: 212-241-9638 Fax: 212-831-3324	NF1 and NF2
	Dr. John Golfinos NYU Medical Center TWR 8 8R 530 First Avenue New York NY 10016 212 263 2950 212 263 1680	NF2
	Dr. Philip Gutin Chief of Neurosurgery Memorial Sloan-Kettering Cancer Center 1275 York Avenue New York, NY 10021 (212) 639-8556	NF2
	Long Island Jewish Medical Center Schneider Children’s Hospital NF Clinic New Hyde Park, NY 11042 Phone: (718) 470-3010 Fax: (718) 347-2814	Contact: Joyce Fox, MD
	Memorial Sloan Kettering 1275 York Avenue New York, NY 10021 Phone: (212) 639-7604 (Dr. Shah) (212) 639-2521 (Dr. Cordeiro)	Contact: Jatin P. Shah, MD Chief, Head & Neck Services Peter G. Cordeiro, MD Chief, Plastic & Reconstructive Surgical Service
	Montefiore Medical Center/ Blythedale Children’s Hospital (Albert Einstein College of Medicine) NF Clinic, Dept. of Pediatrics 111 East 210th Street Bronx, NY 10467 Phone: (718) 920-4300	Contact: Robert Marion, MD
	Mount Sinai Hospital NF Clinic One Gustave Levy Place New York, NY 10029 Phone: (212) 824-7626 Subsidiary of Mount Sinai Hospital, NF Clinic 599 West Hartsdale Avenue, Suite 203a White Plains, NY 10607 Phone: (917) 422-2796	Contact: Sybille Wallace, MD Allan Aron, MD Julie McGlynn, MS Contact: Stanley Rothman, MD
	New York Methodist Hospital Division of Genetics 506 6th Street Brooklyn, NY 11215 Phone: (718) 780-3264 Fax: (718) 780-3085	Contact: Ernest Lieber, MD Sharon Woe Fe, MS Genetics Counselor (718) 636-0971
	New York Presbyterian Hospital Weill Cornell Medical Center Division of Human Genetics Room H.T. 150, 525 East 68th Street New York, NY 10021 Phone: (212) 746-1496 Fax: (212) 746-8893	Contact: Jessica Davis, MD Fred Gilbert, MD
	New York University Medical Center Department of Neurological Surgery 550 First Avenue New York, NY 10016 Phone: (212) 263-8002 Fax: (212) 263-8225	Contact: NF2 Patrick J. Kelly, MD (Neurosurgeon) E-mail: kelly@mcns04.med.nyu.edu
	North Shore University Hospital NF Clinic Dept. of Pediatrics/Dir. Of Medical Genetics 1554 Northern Boulevard, Suite 204 Manhasset, NY 11030 Phone: (516) 365-3996 Fax: (516) 365-4597 Days of Operation: 2nd Thu of each month	Contact: Martin Bialer, MD Ingrid Taff, MD Lakshmi Mehta, MD
	Kalmon Post, M.D. Professor & Chair, Neurosurgery One Gustave L. Levy Place Box 1136 New York, NY 10029 Phone: 212-241-0933 Fax: 212-423-9258	NF1 and NF2
	J. Thomas Roland Jr., MD NYU Medical Center Director, Division of Otology and Neurotology NYU Departments of Otolaryngology and Neurosurgery 530 First Avenue, Suite 3C New York, NY 10016 Tel: 212-263-5565 Fax: 212-263-2334 http://www.med.nyu.edu/people/J.Roland.html	NF2
	Dr. Samuel Selesnick Professor and Vice Chairman Dept. of Otorhinolaryngology Director of Otology, Neurotology and Skull Base Surgery Weill Cornell New York Presbyterian Hospital 1305 York Avenue New York, NY 10021 (646) 962-3277	NF2
	Chandranath Seth, MD (Neurosurgeon) 425 W. 59th Street, #4-F New York, NY 10019 Phone: (212) 523-8500 Fax: (716) 677-6006	NF1 and NF2
	Michael B. Sisti, M.D. Assistant Professor of Neurosurgery Department of Neurological Surgery Neurological Institute 710 West 168 Street New York, New York 10032	NF2
	Stony Brook University Hospital Center for Neurocutaneous Diseases Health Science Center, Level 5 Genetics Division Stony Brook, NY 11794 Phone: (631) 444-2790 Days of Operation: by appointment	Contact: Patricia Parton, MD David H. Tegay, D.O., FACMG
	University of Rochester Medical Center NF Clinic, Box 777 601 Elmwood Avenue Rochester, NY 14642 Dr. Fong (585) 275-3304 (Pediatric Geneticist) Dr. Torres (585) 275-2808 (Pediatric Neurologist) Fax: (585) 275-3683 Email: CTORRES@MAIL.NEUROLOGY.ROCHESTER.EDU	Contact: Chin-To Fong MD Georgianne Arnold, MS Carlos Torres, MD
	Westchester Medical Center Director of Pediatrics Neurology Cedarwood Hall Valhalla, NY 10595-1689 Phone: (914) 493-7569	Contact: Bruce Roseman, MD
	Dr. Kaleb Yohay Cornell University Division of Child Neurology New York Presbyterian Hospital 525 East 68th Street, Box 91 New York, NY 10021 Assistant Professor Work: 212-746-3278 Fax: 212-746-8137	NF1, NF2, Schwannomatosis

North Carolina

	Carolina Ear & Hearing Clinic, PC 3100 Duraleigh Rd. Suite 300 Raleigh, NC 27612 Ph: (919) 876-4327 Fax: (919) 876-6800 website: www.carolinaear.com	Contact: John T. McElveen, Jr. MD David M. Barrs MD
	Carolina Neurology Clinic Pediatric Neurology 1001 Blythe Blvd., #601 Charlotte, NC 28203 Phone: (704) 377-9323	Contact: Teresita Nelson, MD
	Carolina Neuroscience Institute & Skull Base Surgery Center 4030 Wake Forest Road, #115 Raleigh, NC 27609-6800 Phone: (919) 876-4327 Fax: (919) 876-1060	Contact: NF2 Takanori Fukushima, MD, DMSc. (Neurosurgeon) E-mail: fukushima@carolinaear.com
	Duke University Medical Center Division of Pediatric Medical Genetics DUMC 3528 Durham, NC 27710 Phone (919) 684-2036 Fax (919) 684-8944	Contact: Marie McDonald, MD
	Duke University Medical Center Children's Health Center Division of Pediatric Neurology DUMC 3936 Durham, NC 27710 Office: 919-684-3219 Fax: 919-681-8943	Contact: Fawn Leigh, MD
	Fullerton Genetics Center Mission Hospital 14 Victoria Road Ashville, NC 28801 Phone: 888-810-2800 Fax: 828-213-0039 Email: Kerry.Crandall@msj.org	Contact: Kerry Crandall, M.S., CGC
	Steven S. Glazier, M.D. Neurosurgeon Medical Center Blvd. Winston-Salem, NC 27157 phone: 336-716-9728 fax: 336-716-3065	NF1 & NF2
	University of North Carolina Div. of Genetics & Metabolism Medical Research Bldg. A CB# 7487 Chapel Hill, NC 25799-7487 Phone: (919) 966-4202 Fax: (919) 966-3025	Contact: Arthur Aylsworth, MD Cynthia Powell, MD (Pediatrician)
	University of North Carolina Neurocutaneous Disorders Clinic 751 Burnett Womack Bldg. CB #7025 Chapel Hill, NC 27599-2528 Phone: (919) 966-2528 Fax: (919) 966-2922 Days of Operation: M-Th, 9:00am-4:00pm	Contact: Robert Greenwood, MD (Pediatric Neurologist)
	Wake Forest University School of Medicine Medical Center Blvd. Winston Salem, NC 27157-1076 Phone: (336) 716-2533	Contact: Tamison Jewett, MD Vandana Shashi, MD

North Dakota

	University of North Dakota School of Medicine & Health Sciences Department of Pediatrics Division of Medical Genetics PO Box 9037 Grand Forks, ND 58202-9037 Phone: (701) 777-4277 Fax: (701) 777-3220 E-mail: martsolf@medicine.nodak.edu	Contact: John T. Martsolf, MD, FACMG Mary Ebertowski, RN, BSN, MSN
	University of North Dakota School of Medicine & Health Sciences Division of Medical Genetics PO Box 9037 Grand Forks, ND 58202-9037	Contact: NF2 John T. Martsolf, MD martsolf@medicine.nodak.edu

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