Neurofibromatosis, Inc.

Delaware

DuPont Hospital For Children
PO Box 269
Wilmington, DE 19899
Phone: (302) 651-4234 Genetics
Fax: (302) 651-5948

Contact:
Louis Bartoshesky, MD
Linda Nicholson, MS/MC
Karen Gripp, MD
(Orthopedist)

District of Columbia

	Children’s Hospital National Medical Center 111 Michigan Avenue, NW Washington, DC 20010 Phone: (202) 884-2652	Contact: Roger Packer, MD (Child Neurologist) rpacker@cnmc.org
	Children's Hospital National Medical Center Dept. of Medical Genetics NF Clinic 111 Michigan Avenue, NW Washington, DC 20010 Phone: Dr. Tifft (202) 884-2187 Dr. Rosenbaum (202) 884-3332 Fax: (202) 884-2390	Contact: Cynthia Tifft, MD, PhD (Pediatrician, Geneticist) Kenneth N. Rosenbaum, MD. Donna Krasnewich, MD, PhD Deborah Copenheaver, MS Sandra Yang, MS
	Georgetown University Medical Center 3800 Reservoir Road, NW Washington, DC 20007 Phone: (202) 687-4972 (McGrail) (202) 687-8785 (Mott) Fax: (202) 687-3744 (McGrail)	Contact: Stephen Mott, MD (Child Neurologist) Contact: NF2 Kevin M. McGrail, MD (Neurosurgeon) F raser Henderson, MD (Neurosurgeon)
	George Washington University Department of Genetics 2300 Eye Street, NW, Room 455 Washington, DC 20037 Phone: (202) 994-4096 Fax: (202) 994-0714 Phone: (202) 884-2120 Days of Operation: Monday-Friday, 8:30am-5pm	Contact: John Larsen, MD (Geneticist) Lisa Freese, MS (Genetic Counselor)
	George Washington University Medical Center Department of Neurosurgery 2150 Pennsylvania Avenue, NW, Suite 7420 Washington, D.C. 20037-3201 Phone: (202) 994-4035 Fax: (202) 944-9944	Contact: NF2 Anthony Caputy, MD (Neurosurgeon)
	Howard University Hospital Department of Genetics and Human Genetics 520 W Street, NW, Box 75 Washington, DC 20059 Phone: 202-806-6329 Fax: 202-806-7058	Contact: Verle Headings, M.D., Ph.D. Barbara Harrison, MS
	Richard M. Kaufman, MD 1120 19th Street, NW, #200 Washington, DC 20036-3615 (202) 296-0670	Internal Medicine

Florida

	Florida Hospital The Neuro-Oncology Center 2501 North Orange Avenue, Suite 249 Orlando, FL 32804 Phone: (407) 303-2770 Fax: (407) 303-3268	Clinic Director: Nicholas Avgeropoulos, MD
	Jacksonville Hearing & Balance Institute 836 Prudential Drive, #1405 Jacksonville, FL 32207 Phone: (904) 399-0350	Contact: NF2 James Douglas Green, Jr., MD
	Miami Children's Hospital NF Center, 3200 S W 60th Court, Suite 205 Miami, FL 33155 Phone: (954) 663-8595 Fax: ( 954 ) 669-6443 Days of Operation: M, T, W, F, 8:30am-5:00pm	Contact: Mislen Bauer, MD (Pediatrician)
	H. Lee Moffit Cancer Center Neuro-oncology, Suite #3136 12902 Magnolia Drive Tampa, FL 33612-9497 Phone: (813) 979-3056 Fax: (813) 903-7135	Contact: NF2 Steven Brem, MD (Neurosurgeon) E-mail: brem@moffitt.usf.edu
	Nemours Children's Clinic P.O. Box 5720 Jacksonville, FL 32247 Phone: (904) 390-3726 Fax: (904) 390-3422	Contact: Pamela Arn, MD Connie Mol, ARNP
	Shands at University of Florida 1600 S.W. Archer Road Gainesville, FL 32610 Phone: 352-265-8000 1-800-749-7424	Contact: NF1 and NF2 Mark T. Scarborough, MD Orthopaedic Oncologist
	Tampa Bay Hearing & Balance Center Harbourside Medical Tower 4 Columbia Drive, Suite 610 Tampa, Florida 33606 Phone: (813) 844-4900	Contact: NF2 Loren J. Bartels, MD (Otolaryngologist) Email: LBartels@tampabayhearing.com
	University of Florida Health Science Center Dept. of Pediatrics/Genetics Box 100296 J Hills Miller Health Ctr. Gainesville, FL 32610-0296 Phone: (352) 392-4104 Fax: (352) 392-3051 Days of Operation: M-F, 8:00am-5:00pm	Contact: NF1 & NF2 Charles Williams, MD (Geneticist) H.J. Stalker, MS Lisa Rimer, MS
	University of South Florida Medical Center Medical Genetics 10770 North 46th Street, Suite C-900 Tampa, FL 33617 Phone: (813) 975-6900 Fax: (813) 975-6615	Contact: Boris Kouseff, MD
	Dr. Harry R. van Loveren Harbourside Medical Tower 4 Columbia Dr., Suite 730 Tampa, Florida 33606 Office phone: 813-259-0965	Contact: NF2 Neurosurgery

Georgia

	Scottish Rite Children's Medical Center 1001 Johnson Ferry Road Genetics Dept. Atlanta, GA 30342 Phone: (404) 250-2095 Fax: (404) 250-2014	Contact: Kim Armfield, RN
	Medical College of Georgia Medical Genetics BG-121 Augusta, GA 30912 Phone: (706) 721-2809 Fax: (706) 721-7311	Contact: David Flannery, MD (Pediatrician)

Hawaii

University of Hawaii
Department of Ob/Gyn
1319 Punahou Street, Room 824
Honolulu, HI 96826
Phone: (808) 983-8387

Contact:
Kenneth Ward, MD

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