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NF,
Inc.
is a national, tax-exempt, charitable organization whose mission
is to create a network of support for those affected by NF,
through education, advocacy, and coalitions, and by supporting
research for treatments and a cure. We encourage you to explore
our
site,
check back often, and contact us if you need further information. |
New
Research Study for Adults with NF1
www.NF1study.com
If you have NF1 and are
at least 18 yrs old,
you are invited to take a survey about living with NF1!
The survey is completely anonymous and will
take
about
30 minutes
to complete.
This survey is part of a current research study sponsored
by Johns Hopkins University and National Institutes
of Health (NIH).
To take the
survey or find out more, click here or
go to
www.NF1study.com.
Julie
Cohen from the Johns Hopkins/NIH Genetic Counseling Program
presented her NF1 Quality of
Life Research Study to the NF, Inc.
Board
of Directors June 21, 2008.
NF, Inc. Celebrates Its 20th Anniversary
NF,
Inc. Presidents at NF, Inc.'s 20th Anniversary
celebration in Linthicum, Maryland, June 21, 2008.
L to R:
Paul Mendelsohn, 1988-1993; Miguel
Lessing, 2005 - present;
Brenda Duffy 1998-2005.
Not pictured: Mike Flamingo
1994-1997
NF
Buddies is a children’s book,
explaining Neurofibromatosis as a child would.
This book isn’t just for children though.
It's a great way to introduce others to NF.
You can purchase copies on the
NF, Inc. California website.
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Latest
News and Information:
Don't
forget:
Shop at Coffeecakes.com for
delectable edibles and gifts, and benefit NF, Inc.!
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