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Researchers are hard at work trying to understand NF more fully and to find treatments to improve the lives of those with NF. Their studies frequently require participation from affected individuals. The "trials" listed here are opportunities for the NF community to assist in these research projects. All research benefits the NF community as a whole; in the case of drugs being tested, there is also the hope and possibility that the NF participant may personally benefit. Drug trials are normally limited to individuals with specific (and usually severe) symptoms.

Clinical Trials Sponsored by the National Institutes of Health
   



Phase I Study of Lovastatin for Neurocognitive Dysfunction in Children with Neurofibromatosis Type 1
Children with NF1 and history of learning disabilities within an age range of 10 -17 years will be eligible.
Updated June 2008
   
ABI program now recruiting NF2 patients who are ABI users/nonusers for an important research study.
Posted August 2007
   


Phase II Study of Gleevec®/Imatinib Mesylate (STI-571, NSC 716051) in Neurofibromatosis (NF1) Patients with Plexiform Neurofibromas
   






Early Identification of Cognitive Deficits in Children with Neurofibromatosis Type 1.
We are currently looking for young children with NF1 to participate in a research study at Children's National Medical Center. We are trying to learn more about how the brain works in infants and pre-school children with NF1. Children with NF1 less than 40 months of age will be eligible for participation.
Posted January 2006

 
  Neurofibromatosis, Inc.
  P.O.Box 18246
  Minneapolis, MN 55418
Phone: (301) 918-4600  
1- 800-942-6825