Neurofibromatosis, Inc.

NF, Inc. is a national, tax-exempt, charitable organization whose mission is to create a network of support for those affected by NF, through education, advocacy, and coalitions, and by supporting research for treatments and a cure. We encourage you to explore our site, check back often, and contact us if you need further information.

MTV is currently casting for a new True Life
program, "I Have Neurofibromatosis."
Click here to find out more!

NF Buddies

NF Buddies is a children’s book, explaining Neurofibromatosis as a child would. This book isn’t just for children though. It's a great way to introduce others to NF. To find out more or to order copies, visit the NF, Inc. California website.

Do you have a child or know a child with NF who is struggling? We are now offernig care packages to give these children a lift.

Find out more today.

Latest News and Information:


	Join Our Email List

Announcement from UCLA: Professor Alcino Silva at UCLA announces a clinical trial to establish the safety Lovastatin on humans with NF1 in hopes that it could be a potential treatment for cognitive deficits associated with NF1. Learn more about the clincal trial or download the brochure.

The NF Consortium is dedicated to conducting clinical trials to improve the quality of life of persons with neurofibromatosis. The consortium consists of nine clinical centers around the U.S. To find out more about the clinical centers and clinical trials go to www.nfconsortium.org.

Read the NF, Inc. Spring 2009 newsletter!

Kennedy Krieger Institute seeks participants for reading study; children and teens ages 8 - 17 with NF1 are encouraged to apply.

Neurofibromatosis Research Program (NFRP) announces 2009 funding opportunities

NF I and Transition of Health Care: Perspectives from Adolescent Patients and Their Parents currently seeking participants

Researchers Identify Mechanism and possible drug treatment for growth of nerve tumors in neurofibromatosis.

NF brochure contains information on NF1, NF2, programs and services offered by NF, Inc., and more. Email nfinfo@nfinc.org to order.

Don't forget:
Shop at Coffeecakes.com for delectable edibles and gifts, and benefit NF, Inc.!